NED:
I think that's the word for me: No Evidence of Disease. I had a scare the other week because I had no appetite, was nauseous and throwing up. I thought maybe it had spread to my liver. But, I had a CT scan and it was all clear! That, along with my clear MRI last month add up to NED.
So, now at this point I move past the "treatment" phase and into the maintenance phase. I will get brain MRI's every 3-4 months and CT of the chest/abdomen/pelvis every 6 months. I will continue to treatment of Herceptin (because the breast recurrence was HER2+) for a year, so until about October 2012. That's fine because it doesn't make me feel bad or anything. I just need to be on the "lookout" I guess for any funky symptoms. That's gonna be a little getting used to. I had a headache yesterday and the first thing I think is, OMG - its back. I know it's only a matter of time - I just hope that it's like 10+ years time. Right now I'm thinking what a tough road for me, to always have that worry in the back of my head. I just hate worrying! I just sucks the fun out of life! I know, I know: keep my faith, live life to the fullest, enjoy my family and friends. I am! There is so much that I have plans to do (but again, priorities!) I want to form some kind of traditions that my kids will remember about me. I want to start exercising. I want to create something (if only I was creative!) All these good intentions and so few hours to do them. At least, that's my excuse! I know that it all boils down to priorities and I need to set those things as priorities. So, let's see if in the season of easter and re-birth, if I can get these things going.
